Online emotional support: discourse functionalities on Chilean Facebook pages by patients with chronic pain

Mariana Pascual

Resumo


This research analyzed an emerging and rapidly increasing type of communication from the perspective of its social purpose (MARTIN; ROSE, 2008). We focus on comments from three public Facebook webpages by endometriosis patients to determine the interpersonal configuration of the texts produced. The corpus comprises 7230 comments written over a period of over four years. The data were analyzed in terms of the interpersonal configurations based on the System of Appraisal (MARTIN; WHITE, 2005). Results indicate that Facebook pages corresponding to patient interaction perform a variety of social purposes, thus, different discourse genres. The main genres identified refer to the exchange of affective meanings, aiming at consolidating a sense of community and align its members, by exchanging emotional support. Other genres aimed at the exchange of information, focusing on specific details of the condition. A third type of genre identified was of the story type, narrating the patients’ experiences with endometriosis and the resulting chronic pain. Results point to clearly different discoursal configurations, with a marked interpersonal functionality. This highly interactive form of digital communication seems to have partly replaced patient-patient interactions given in face-to-face modalities in the past, in clubs, churches, hospitals or other support groups. However, it has expanded the typical narrative nature and purpose of the original social practice, to include genuine exchanges of information and emotion which seems to have been facilitated by the distant and more impersonal type of participation stemming from online communication.


Palavras-chave


Discourse genres. Digital communication. System of Appraisal.

Texto completo:

PDF (English)

Referências


Cambridge, 2007.

ANTÓN, M.; GOERING, E. Understanding Patients’ Voices: A Multi-method Approach to Health Discourse, John Benjamins, Philadelphia, 2015.

BEDNAREK, M., Emotion Talk across Corpora. London/New York, Palgrave Macmillan, 2008.

BIBER, D., Dimensions of register variation: A cross-linguistic comparison. Cambridge, Cambridge University Press, 1995.

BORNAT, J. Biographical Methods, en Pentti Alasuuta, Julia Brannen y Leonard Bickman (coords.), Handbook of Social Research, London, Sage, 2008.

BULLO, S. “I feel like I’m being stabbed by a thousand tiny men”: The challenges of communicating endometriosis pain. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 2019.

BULLO, S. Exploring disempowerment in women’s accounts of endometriosis experiences. Discourse & Communication. 2018, 11(6): 1–18.

ELLIOTT, J. Using Narrative in Social Research: Qualitative and Quantitative Approaches, Londres, Sage; 2005.

HALLIDAY, M.A.K. An Introduction to Functional Grammar. Edward Arnold, 1985.

HALLIDAY, M.A.K. Language as social semiotic: The social interpretation of language and meaning. London: Edward Arnold, 1978.

HALLIDAY, M.A.K.; MATTHIESSEN, C. Halliday’s introduction to functional grammar (4th ed.). Routledge, 2014.

HAMILTON, H.; CHOU, W.S. The Routledge Handbook of Language and Health Communication. Routledge, 2016.

HJELMSLEV, L. Prolegomena to a Theory of Language. University of Wisconsin Press, 1961.

HOOD, S. Appraising research: Evaluation in academic writing. Palgrave Macmillan, 2010.

JACOBS, R. et al. The importance of social media for patients and families affected by congenital anomalies: A Facebook cross-sectional analysis and user survey. Journal of Pediatric Surgery. 51, 11,  2016, pp.1766-1771.

KAPLAN, A.M.; HAENLEIN M. Users of the world, unite! The challenges and opportunities of social media. Business Horizons, 53(1), 2010, pp. 59–68.

KOBALL, A.M. el al. Examination of bariatric surgery Facebook support groups: a content analysis. Surg Obes Relat Dis. 2017, 13(8), pp.1369-1375.

LABOV, W.; WALETZKY, J. Narrative analysis. Essays on the Verbal and Visual Arts, ed. J. Helm, 12-44. Seattle: U. of Washington Press, 1967. Reprinted in Journal of Narrative and Life History 7, 1967, pp. 3-38.

LEPPANEN, S.; WESTINEN, E.; KYTOLA, S. Social Media Discourse, (Dis)identifications and Diversities. Routledge, 2017.

MARTIN, J.R. Grammaticalising ecology: the politics of baby seals and kangaroos. T Threadgold, E A Grosz, G Kress; M A K Halliday [Eds.] Semiotics, Ideology, Language. Sydney: Sydney Association for Studies in Society and Culture (Sydney Studies in Society and Culture 3) 1986, pp. 225-268.

MARTIN, J.R. English Text: System and structure. Amsterdam: Benjamins, 1992.

MARTIN, J.R. Beyond exchange: Appraisal systems in English. En S. HUNSTON, S., THOMPSON, G. (Eds.), Evaluation in text: Authorial stance and the construction of discourse (pp. 142–175). Oxford: Oxford University Press, 2000.

MARTIN, J.R. Mourning: how we get aligned. Discourse and Society, 15 2-3, 2004, pp. 321-344.

MARTIN, J. R.; D. ROSE. Working with Discourse. Continuum, 2007.

MARTIN, J. R.; D. ROSE. Genre Relations: Mapping Culture. Equinox, 2008.

MARTIN, J.R.; WHITE, P.R.R. The language of evaluation. Appraisal in English. Palgrave Macmillan, 2005.

MUSTAFA, H. R.; SHORT, M., FAN, S. Social Support Exchanges in Facebook Social Support Group. Procedia - Social and Behavioral Sciences, 185, 2015, pp.346–351.

NGO, T.; UNSWORTH, L. Reworking the Appraisal Framework in ESL Research: Refining Attitude Resources. Functional Linguistics. 2015, 2, 1, pp.1-24.

PARTRIDGE, S.R. et al. Facebook Groups for the Management of Chronic Diseases. Journal of Medical Internet Research. 2018, 17;20(1): e21.

PASCUAL, M. La construcción de la evaluación en los discursos de memoria y dolor: aportes desde las intersecciones. En Métodos de Análisis del Discurso, Perspectivas argentinas. Oscar Iván Londoño Zapata; Giohanny Olave Arias (Coord.). (pp. 177-194). Ediciones de la U: Bogotá, 2019.

PASCUAL, M. Discurso, salud e información desde el relato de pacientes de endometriosis. Discurso & Sociedad, 2020 14(2), pp. 421-442.

PASCUAL, M.; DÍAZ ALEGRÍA, N. El afecto en relatos de experiencias de dolor crónico en comentarios de Facebook de mujeres chilenas. Nueva Revista del Pacífico, 2021, 74, pp. 47-64.

POELL, T. Social media, temporality and the legitimacy of protest. Social Movement Studies, 19:5-6, 609-624, 2019.

ROSE, D. Genre in the Sydney School. In J Gee; M Handford (eds) The Routledge Handbook of Discourse Analysis. London: Routledge, 2011, pp. 209-225.

ROTHIER DUARTE, C.; BATISTA MELO, L. Discurso e adesão a páginas do facebook: uma investigação integrada sobre ethos, gênero e suporte. Álabe 19. 2019.

SOLMAZ, O. Multilingual and Multimodal Repertoires as part of Identity Management on Facebook: A Case of International Students. Journal of International Students, 8, 4, 2018, pp. 1662–1680.

SPIEGEL, D. et al. Effect of psychosocial treatment on survival of patients with metastatic breast cancer. Lancet, 2, (8668), 888-891, 1989.

STÆHR, A. Reflexivity in Facebook interaction – Enregisterment across written and spoken language practices. Discourse, Context and Media, 8, 30-45, 2015.

TASHAKKORI, A.; TEDDLIE, C. (coords.), Handbook of Mixed Methods in Social and Behavioral Research, 2a ed., Thousand Oaks, Sage, 2010.

von RAFFLER-ENGEL, W. Doctor-patient interaction. John Benjamins Publishing Company, 1989.

WODAK, R. Disorders of Discourse. London: Longman, 1996.




DOI: http://dx.doi.org/10.22168/2237-6321-32298

Apontamentos

  • Não há apontamentos.


Entrepalavras © 2012. Todos os direitos reservados.
Av. da Universidade, 2683, Benfica, CEP 60020-180, Fortaleza-CE | Fone: (85) 3366.7629
Creative Commons License
Entrepalavras (ISSN: 2237-6321) está licenciada sob Creative Commons Attribution-NonCommercial 3.0.